A remarkable thing happened. It was subtle. I started to notice it when it was time to charge my implant battery.
I vacuumed my closet.
I washed dishes.
I did a load of laundry.
If you’re thinking, so what? You’re right. So what?
I have someone who takes care of our household responsibilities so I never have to do it.
I haven’t been able to do basic household management since my diagnosis, which has been six years.
The words rare and incurable have been in my vocabulary for a long time.
Remission hasn’t been part of my story.
My brain thinks both my hands and arms are burned, badly.
Because my sympathetic nervous system was traumatized and now it is confused and misfiring and sending wrong messages to my brain via my spinal cord.
So my “last resort” — a cervical spinal cord stimulator has been kind to me. It blocks the impulses at the spinal cord level so they won’t get to my brain.
No more burning.
No more deep bone pain.
No more texture issues.
No more temperature issues.
No more days filled with unrelenting nerve pain.
Not remission, but the next best thing.
I feel like I’m back amongst the living.
And it feels good.
While it lasts.